Privacy Notice

The Good Clinical Trials Collaborative respects your privacy and is committed to protecting your personal data.  This privacy policy explains how we collect, share and use personal information about you, and how you can exercise your privacy rights.

 

This privacy policy only applies to personal information you provide to us when you visit our website www.goodtrials.org  the “website”) regardless of where you visit it from; sign up to attend one of our events; provide us with feedback, either through this website or at an event; provide us with a testimonial; interact with us; or we interact with you, via a social media platform, telephone or in person.

 

The Good Clinical Trials Collaborative – who we are:

The Good Clinical Trials Collaborative (GCTC) was launched in June 2020, supported by Wellcome, the Bill & Melinda Gates Foundation and the African Academy of Sciences. The aim of the Collaborative is to develop  guidance to enable and promote informative, ethical and efficient Randomized Controlled Clinical Trials (RCTs).  In 2022 the GCTC moved from Wellcome and became a part of Protas. Find out more about Protas by clicking this link https://protas.co.uk

 

Protas is the controller for the personal information we process unless otherwise stated.  Protas’ DPO is Jonathan Sellors. The email is: dpo@protas.co.uk

 

The GCTC has brought together a wide range of individuals and organizations with an interest in and role to play in the design, delivery, analysis and reporting of RCTs, and in implementing the results. This includes those who fund, regulate, design, deliver, or are responsible for RCTs, those who provide audits and quality assurance functions, research organizations, clinicians, participants, ethicists, and lay health advocates. It includes those from a wide variety of sectors (industry, academia, government, charitable, non-governmental organizations, participant and public groups) and settings.

 

This privacy policy gives you information on how GCTC collects and processes your personal data:

  • through your use of this website, including any data you may provide through this website when you provide feedback to us, or sign up to attend one of our events;

  • when you sign up to attend one of our events

  • provide feedback to us following a GCTC event that is not provided through the website (i.e. in paper format);

  • when you interact with us over social media;

  • when you interact with us or we interact with you by telephone or in person

The website is not intended for children and we do not knowingly collect data relating to children.

 

It is important that you read this privacy policy together with any other privacy policy or fair processing policy we may provide from time to time when we are collecting or processing personal data about you so that you are fully aware of how and why we are using your data. This privacy policy supplements other notices and privacy policies and is not intended to override them.

 

Changes to the privacy policy

We keep our privacy policy under regular review. This version was last updated in January 2022.  Before January 2022 the GCTC privacy policy was under the umbrella of the Wellcome Trust privacy policy,  in January 2022 GCTC developed its own project-specific privacy policy.

 

What type of information do we collect?

Personal data, or personal information, means any information about an individual from which that person can be identified. It does not include data where the identity has been removed (anonymous data).

We may collect, use, store and transfer different kinds of personal data about you which we have grouped together as follows:

  • Technical Data includes internet protocol (IP) address, browser type and version, time zone setting and location, language preference, browser plug-in types and versions, operating system and platform, and other technology on the devices you use to access this website.

  • Usage Data includes information about how you use our website.

  • We do not request any information about special category personal data or about criminal allegations, convictions or offences and would ask that you do not provide such information to us.

 

How do we collect information?

  • Automated technologies or interactions. As you interact with our website, we will automatically collect Technical Data about your equipment, browsing actions and patterns (and the type of information we collect will depend on which cookies we are permitted to set). We collect this personal data by using cookies, server logs and other similar technologies. We may also receive Technical Data about you if you visit other websites employing our cookies.

  • When you sign up to one of the GCTC events we will request that you provide us with the minimum information necessary to ensure you are eligible to attend and that we can provide you with the information you need before during and after the event.

  • When you provide feedback or interact with GCTC in written or verbal form we will request that you provide us with the minimum information necessary to understand your role and the nature of your engagement.

Why do we collect such personal information?

We will only use your personal data when the law allows us to. Most commonly, we will use your personal data in the following circumstances:

  • Where it is necessary for our legitimate interests (or those of a third party) and your interests and fundamental rights do not override those interests. When we talk about our Legitimate Interest, this generally means the interest of GCTC in conducting, running and promoting GCTC’s work. We make sure we consider and balance any potential impact on you (both positive and negative) and your rights before we process your personal data for our legitimate interests. We may have other legitimate interests, and if appropriate, we will make clear to you at the relevant time what those legitimate interests are.

 

  • Where we need to comply with a legal obligation. This means processing your personal data where it is necessary for compliance with a legal obligation that we are subject to. Generally, we do not rely on consent as a legal basis for processing your personal data (where we do rely on consent, we will ask for it before we process the information).

 

  • To create aggregated statistical data and other aggregated and/or inferred Non-personal Information, which we or our business partners may use to provide and improve our respective services

 

How do we store, use, share and disclose our site visitors' personal information?

Our website is hosted on the Wix.com platform. Wix.com provides us with the online platform that allows us to sell our products and services to you. Your data may be stored through Wix.com’s data storage, databases and the general Wix.com applications. They store your data on secure servers behind a firewall. 

We collect only essential or functional cookies, listed here:

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You can change your cookie preferences at any time by clicking on the Manage Your Consent icon. You can also set your browser to refuse all or some browser cookies, or to alert you when websites set or access cookies. If you disable or refuse cookies, please note that some parts of this website may become inaccessible or not function properly.

 

Change of purpose

We will only use your personal data for the purposes for which we collected it, unless we reasonably consider that we need to use it for another reason and that reason is compatible with the original purpose.

Please note that we may process your personal data without your knowledge or consent, in compliance with the above rules, where this is required or permitted by law.

 

How can you withdraw your consent for non-functional cookie use?
If you don’t want us to process your data anymore, please contact us at dpo@protas.co.uk

 

Privacy policy updates

We reserve the right to modify this privacy policy at any time, so please review it frequently. Changes and clarifications will take effect immediately upon their posting on the website. If we make material changes to this policy, we will notify you here that it has been updated, so that you are aware of what information we collect, how we use it, and under what circumstances, if any, we use and/or disclose it. 

Questions and our contact information

If you would like to: access, correct, amend or delete any personal information we have about you, you are invited to contact us at dpo@protas.co.uk

 

Disclosures of your personal data

From time to time we ask third parties to carry out certain business functions for us. These third parties will process your personal data on our behalf (as our processor). We will disclose your personal data to these parties so that they can perform those functions. Before we disclose your personal data to other people, we will make sure that they have appropriate security standards in place to make sure your personal data is protected and we will enter into a written contract imposing appropriate security standards on them. Examples of these third party service providers include service providers and/or sub-contractors, such as our IT systems software and maintenance, back up, and server hosting providers and external legal providers.

In certain circumstances, we will also disclose your personal data to third parties who will receive it as controllers of your personal data in their own right for the purposes set out above, in particular:

  • If we transfer, purchase, reorganise, merge or sell any part of our business or the business of a third party, and we disclose or transfer your personal data to the prospective seller, buyer or other third party involved in a business transfer, reorganisation or merger arrangement (and their advisors); and

  • If we need to disclose your personal data in order to comply with a legal obligation, to enforce a contract or to protect the rights, property or safety of our employees, Participants or others.

We may also share your personal data with third parties, as directed by you.

 

International transfers

If any of our processing activities require your personal data to be transferred outside the European Economic Area, we will only make that transfer if:

  • the country to which the personal data is to be transferred ensures an adequate level of protection for personal data;

  • we have put in place appropriate safeguards to protect your personal data, such as an appropriate contract with the recipient;

  • the transfer is necessary for one of the reasons specified in data protection legislation, such as the performance of a contract between us and you; or

  • you explicitly consent to the transfer.

Data security

We have put in place appropriate security measures to prevent your personal data from being accidentally lost, used or accessed in an unauthorised way, altered or disclosed. In addition, we limit access to your personal data to those employees, agents, contractors and other third parties who have a business need to know. They will only process your personal data on our instructions and they are subject to a duty of confidentiality.

We have put in place procedures to deal with any suspected personal data breach and will notify you and any applicable regulator of a breach where we are legally required to do so.